A 10-year-old Australian girl has been diagnosed with a rare and severe illness that causes excruciating pain in her entire right leg when she moves or even when someone touches it. According to the New York Post, Bella Macey’s ailment began on a family vacation in Fiji when a blister on her right foot got infected. She was later diagnosed with complex regional pain syndrome (CRPS), dubbed the “most painful condition” known to mankind.
“Since her diagnosis, she has been battling excruciating pain that affects her daily activities and steals away her childhood. Bella’s pain has meant she has lost mobility in her right foot and leg, right up to her groin. She is now bedridden or in a wheelchair if she needs to get around,” her GoFundMe campaign page read.Â
What is Complex Regional Pain Syndrome?
CRPS is a rare and incurable pain illness that causes continuous and excruciating pain. “It’s all sharp, burning, and tingly.” “It’s all kinds of pain I never knew was possible,” Bella told A Current Affair, according to the Post.
“I can’t have a shower, I can’t have a bath,” Bella said, adding, “I can’t put (on) any sheets or anything on … even with a tissue, you can’t touch it with anything, otherwise I will scream.”
The unusual illness, which is frequently triggered by minor traumas or procedures, has suddenly put Bella’s life on hold. The 10-year-old is unable to walk, tolerate any touch or feeling to her affected leg and foot, go to school, play with her friends, or even wear pants.
Since Bella’s family was unable to discover solutions in Australia, they sought assistance from US doctors.
Bella’s mother has set up a GoFundMe page to help pay for her daughter’s treatment
According to the New York Post, Bella and her mother traveled to the United States to seek treatment at the Spero Clinic. Despite the good news that treatment may be available, the Macey family is unsure whether they can afford it. As a result, Bella’s mother has set up a GoFundMe page to help pay for her daughter’s treatment.
